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How Your Passion for Health Can Fuel Community Change

You care about health. Maybe it’s the way you look out for friends, share wellness tips, or follow new treatments before they hit mainstream news. Whatever sparks your interest, there’s power in turning that personal passion into public purpose. This isn’t about having credentials — it’s about showing up, speaking up, and knowing where your voice fits. Health advocacy isn’t reserved for experts; it’s for anyone who’s ever said, “This should be better.” And it can start right where you are. Start with What You See The easiest entry into advocacy? Pay attention to what frustrates or inspires you — then speak from it. Are parents in your neighborhood struggling with asthma triggers? Does your town lack safe places to walk or access to fresh food? Issues like these don’t need giant campaigns — they need grounded voices. As you raise yours, you might find your role mirrors the evolving roles and responsibilities of community health advocates who conne...
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SKIN DISORDERS, "Cutis Laxa"


Cutis Laxa is a rare skin disorder that causes the skin to be loose and saggy but not stretchy. Cutis Laxa is an inherited disorder of the connective tissue, which keeps the skin appearing extremely saggy. Affecting approximately 200 families worldwide, an individual who suffers from this disorder will have skin that has folds in it, creating an appearance of droopy skin. Also, this may become more noticeable if the person has wrinkled skin, particularly around the neck and groin area. Although this disorder sounds like a problem that can can only affect a person outwardly, there are also medical problems associated internally with having Cutis Laxa. It can affect the heart, blood vessels, joints and lungs. It is not uncommon for a person who suffers from Cutis Laxis to have heart problems, abnormal bulging and tearing of arteries. Other problems may include the following:
  • Soft outpouching in the lower abdomen
  • Soft outpouching in the stomach area
  • Pouches possibly forming in the bladder and intestine
There are also different forms of Cutis Laxa. To learn more about the different forms of this disorder, please click on the link provided below. 


Currently, there is no treatment for Cutis Laxa. The disorder will likely progress. However, many doctors will use a treatment known as dapsone (click on dapsone to learn more! ) to control the swelling in specific areas. If you or someone you know may be suffering from this disorder, it is important to see your doctor for possible treatment. 

For additional information, including statistics, causes, stories, complications and more, please view the following links below. 


ADDITIONAL INFORMATION:



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    PHOTOS TO CUTIS LAXIS







    "And he said, The things which are possible with men are possible with God (Luke 18:27)."






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